Help for today. Hope for tomorrow.

The iowa connection

Related Links

There is a new website that will allow quick notification of opportunities for research trials and clinical studies for Huntington’s Disease patients and families. To insure privacy this website, www.hdtrials.org/, will be hosted on a separate server, completely apart from any of the participating organizations, including HDSA. In fact, there are steps outlined on the site that will allow people to create a new email address.

If you are an HD patient or family member who would be interested in keeping up with current research information check this site out.

Huntington’s disease society of america

The official website of our National organization. Features include news, national and local events, fundraising, advocacy and support.

Huntington’s disease center of excellence at the  university of iowa

Website of the Center of Excellence at the University of Iowa in Iowa City. Contact them for information about current research trials.

Hd lighthouse

The HD Lighthouse is a web page filled with information for HD patients and families. Articles range from new treatments and research to dealing with HD.

Huntington study group

Seeking treatments that make a difference for Huntington’s Disease.

Hereditary disease foundation

Aims to cure genetic illness by supporting basic biomedical research.

HD tripod

Jean Miller’s compilations of inforamtion for Huntington Disease patients and families

New website keeps patients in touch with clinical trials

National alliance for caregivers

Dedicated to providing support to family caregivers and the professionals who help them.

National Family Caregivers Association

Educate-Support-Empower-Advocate

iGive internet shopping mall

Shop till you drop. Up to 30% of every purchase is donated to HDSA.

international huntington association

A federation of national voluntary health agencies joined in the fight against HD

do your own will

Free instructions to do you own will.

legal forms for each state

This web site has complete legal forms for each state in the US. Fee charged

legal zoom

Provides help on living wills, durable power of attorney, etc. Fee charged.

five wishes booklet

This website gives help on putting together a living will. Fee charged.

These young men enjoyed the 2010 Iowa Hoop Tour as it rolled into Bedford. The Hoop is an opportunity for all ages to help raise funds for HD Research.

One family’s struggle with hd

One family dedicated to funding a cure for Huntington’s Disease

flowers for hd

15% of your total purchase with FTD will benefit HDSA

flowerpetal

Send flowers for any occasion and a percentage will go to benefit HDSA